Thank you to Jennifer Sajak and her mom for the knock, knock. This is for them.
As much as I thought I was in control of my PD I just realized i was not. Jennifer and her mom were the wake up call I needed. I have been given the gift and responsibility of Parkinson’s to be available, open and honest with those who have just been diagnosed or are struggling through the progression. We are all different, I by no means have the answers to many questions…You will find a wealth of knowledge and education at the MJF website….what I can do is give my experience, inspiration and a whole lot of humor.
Here is my biggest advise…..Stay connected with friends….you will find out who your besties are. One of mine is Jennifer Amsellem….she is relentless for which I am thankful, she also allows me to have my reclusive times but not for long….that is a true bestie.
I have been asked several times in the last few months how I am doing….understand, that I have become a master in hiding a lot of my symptoms…BUT it is becoming harder and harder. Yes, I’m in pain, yes, i sleep little, yes, I’ve got dyskinesia….I will write more about these in following blogs….maybe!!!
I am armed with the best neurologist Dr. Isa and the team at Shands….if you are new to Parkinson’s, this is vital…more on that…maybe.
I say “maybe” because I prefer to write about my everyday life, the amazing places I adventure to and the incredible people I meet. Of course I take my buddy Parkinson’s along on my journey.
So…..here’s my new thing…..Photography. It’s open up a whole wonderful new world for me….I have even had a exhibit/critique at the Maitland Art Gallery. Yes, I know…you are wondering….”how do I keep the iPhone/iPad from shaking” . Well, I don’t and can’t …in fact at times my one side shakes so much…i just go with the flow. Inevitably the photo wins by taking the focus of my buddy Parkinson’s and onto the serenity of the subject matter.
I share with you some of my most recent…..
